Relevant information for participants of the Ageing Projects carried out from 2010 to 2015 (Project PSI2009-14415-C03-01 and Project PSI2012-38375-C01-01).
From 2010 to 2015, the Laboratory of Cognitive and Computational Neuroscience carried out two research projects, focused on normal and pathological ageing, named “Multidisciplinary approach to early diagnostic of Alzheimer’s disease: neurofunctional connectivity, neuropsychology and genetic profiles” and “Understanding memory complains: an approach from genetics, neuropsychology and anatomic-functional connectivity”.
In 2021, the Laboratory entered as a partner in the multicenter project AI-Mind, funded by the European Union. The AI-Mind project aims to predict the conversion from mild cognitive impairment to Alzheimer’s- dementia. The Laboratory plans to use the data obtained in the above-mentioned projects in order to define biomarkers that may allow to predict the conversion risk of new patients. These data will be pseudonymized to fulfill the guarantees defined in the General Data Protection Regulation (GDPR). Specifically, the use of the data is regulated by the article 9, section 2, letter g of the GDPR. In accordance with the seventeenth additional disposition of the “Ley Orgánica 3/2018, de 5 de diciembre, de Protección de Datos Personales y garantía de los derechos digitales”, it is lawful the reuse of personal data with research purposes in health and biomedical fields when, once obtained the informed consent the first time for a particular purpose, the data is reused for goals and research related to the field of study of the original project.
Therefore, in accordance with the article 13 of the GDPR, the Laboratory publicly announces the reuse of this data with the goal previously mentioned. Specifically, the Laboratory lets the participants know that:
- The participants can exercise their right of access, modification, or cancelation by contacting the data controller, Fernando Maestú (email@example.com).
- The participants can also contact the Data Protection Officer of the Universidad Complutense de Madrid using the email firstname.lastname@example.org.
- After the pseudonymization, the data will be transferred to Oslo (Norway) fulfilling the guarantees imposed by the GDPR. The data will be pseudonymized with a technical and functional separation between the research team and the people responsible of the pseudonymization, adopting particular security measures to avoid the reidentification by the team in Oslo and the access of non-authorized parties.
- The use of the data ends with the project deadline, i.e., 28 of February of 2026.
- The participants can revoke their consent at any moment by contacting the data controller without affecting the use of the data previous to the revocation, when their revocation does not refer to the results of the investigation.
- The Ethic Commission has conferred a favorable report on the project.
Finally, the Laboratory would like to thank again all the participants, whose willingness to help is the basis of our work and it is vital for the progress of the scientific knowledge.